WORLD MSA DAY 2019

Walk or Cycle "A Mile (or Km) for MSA and Light a Candle". - The goal is to attempt to walk and cycle around the world (40.075 kilometers or 24,901 miles around the Earth at the equator). - Be a part of it !

World MSA Day October 3

Even though we speak different languages, are different colors and are of different cultures, we all have the same disease.

With all our differences we are united in battling MSA and we truly hope in miracles. One day they will find how to cure MSA.

We hope that everyone involved in any association, group or as an individual,

will take time to talk to others about MSA.

We ask that on the 3rd of October special attention is given to bringing about awareness of the subject. 

This can be done by organizing some activity in your group, your community, your city and if possible even in your country to raise what is needed to combat MSA.

 

To all MSA patients, family of patients, caretakers from all over the world, as from now,

the 3rd of October is a special day for you.

Please; place this date on your agenda and try to organize a local event on or around October 3rd. 

It can go from very small actions in the little town by talking with a few school kids and make them aware about MSA. Organize a local Bingo, Bowling …, or even some bigger events together with local Medical support from your Neurologist, Doctor or Nurse. …If you are up to it, even a large show to raise proceeds would be welcome. Please let us know what your plans are and we will add it into the international MSA calendar.

We rely on the local support groups and organizations to highlight MSA in their own group, area, city, and country. 

Each local group can use this day to promote local Awareness and obtain funding and support.

It is through the local groups that World MSA Day will become the most important day of the year for all MSA patients.

If you as an individual, as a group, or as a community want to bring your local activities into the spotlight, please forward brief information and a contact email / postal address.

We will put you on this special website of the WORLD MSA DAY.

This is a free website with no commercial intentions.

 

Please, spread the word…….

A Mile and a Candle for MSA

www.world-msa-day.org

Have a great day and thanks for all your support

Ritje

Posted on 2019/05/27

Dear all,

It’s time to reflect on what we did and what we could have done over the past year.

A lot of good ideas have been raised by different individuals and support groups around the globe. Thanks to every single person for the effort made to bring about awareness of MSA and World MSA Day.

Although we at times feel alone, we have a common interest; that is our fight against MSA.

We are fortunate to be able to communicate through the Internet. Even though we are kilometres apart, we are brought together by a click of the mouse, joining together countries such as New Zealand – Australia – South Africa- the USA – Venezuela – Israel – and all the countries in Europe.

Our voices will be echoed around and will be multiplied each time, again and again till everyone on earth will know what MSA is. There will be a day they find a cure; I strongly believe this. 

To achieve our aim, we need to persevere through out the years ahead.

We all make New resolutions and would like to hear from all what good intentions they have.

The next World MSA Day will be here sooner than we think. Please; place this date on your agenda and try to organize a local event on or around October 3rd.

It can go from very small actions in the little town by talking with a few school kids and make them aware about MSA. Organize a local Bingo, Bowling …, or even some bigger events together with local Medical support from your Neurologist, Doctor or Nurse. …If you are up to it, even a large show to raise proceeds would be welcome. Please let us know what your plans are and we will add it into the international MSA calendar.

From our side we have a lot to share and we hope you will share your ideas with us.

We like to thank you all again, and wish you a peaceful Christmas, and a prosper 2013.

Greeting to all of you!

Rita Schouppe, spokesperson

World MSA Day Volunteers Team

posted: December 17, 2012

posted May 31, 2015