Next World MSA Day, October 3, 2018

Le 3 octobre 2018 Journée Mondiale pour l'AMS




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"I have a dream....cure MSA”


"One person can make a difference, and everyone should try." - by  John F. Kennedy



Worldwide action: A Mile & A Candle for MSA

Walk, Run or Cycle a Worldwide Action to be held to Celebrate

World MSA Day on the 3rd of October.


Miles or Km’s, all day long

Light a candle at 20:00 hrs / 8:00 p.m. for one hour local time

Each step, each inch is a start for the 40.075 kilometers or 24,901 miles needed.



        The World Population is estimated to be 7,519,528,135 (as of July 18, 2017)

This means that statistically we can estimate that worldwide 375975* people may be affected with MSA at this time.  (*<5 cases per 100.000)


The World Population is estimated to be 7,318,680,058 (as of May 31, 2015)

This means that statistically we can estimate that worldwide 365.930* people may be affected with MSA at this time.  (*<5 cases per 100.000)


The World Population is estimated to be 7.244.587.890 (as of July 20, 2014)

This means that statistically we can estimate that worldwide 362.225* people may be affected with MSA at this time.  (*<5 cases per 100.000)


        The World Population is estimated to be 7.158.889.700 (as of July 26, 2013)  

This means that statistically we can estimate that worldwide 357.944*  people may be affected with MSA at this time. (*<5 cases per 100.000)   


        The World Population is estimated to be 7.044.688.950 (as of June 1, 2012)

This means that statistically we can estimate that worldwide 347.635* people may be affected with MSA at this time. (*<5 cases per 100.000)   


        The World Population is estimated to be 6.952.785.870 (as of August 1, 2011).  This means that statistically we can estimate that worldwide 347.635* people may be affected with MSA at this time.  (*5 cases per 100.000)


We want to have a candle lit for everyone that may be affected with MSA and for all those loved ones who have lost their battle in the past.


A Candle:

You can light your candle at home alone, or with friends and family, or during your local activity that is planned for World MSA Day.


As candles are lit around the globe, a virtual 24-hour wave of light will be created as it moves from time zone to time zone.  Please light your candles at 20:00 hrs / 8 p.m. in your local time zone for one hour.


The flame of the candles will unite family and friends all over the world and bring awareness to MSA.  If you organize an event, you can sell candles to all participants and send the proceeds to benefit and support local MSA groups.  Each single $, €, £ , ¥ counts. (MSA Support Groups who are interested please forward your full information, so we can add your info on the list).


A Mile:

You can walk or cycle alone, or with family, friends and neighbors. Every step, every kilometer or mile we will count together. The goal is to attempt to walk /cycle around the earth (40.075 kilometers or 24,901 miles around the Earth at the equator).


Let’s see how far we come this year.

Send in your mileage to be tallied. If you are able to get sponsors for your steps, your wheelchair distance, your miles or kilometer, please forward the proceeds to support local MSA groups.


A Mile and A Candle… please do as much as you are able to do, each step, each inch or centimeter is a start for the 40.075 kilometers or 24,901 miles needed.  Each single candle counts toward the 347.635* needed.


Thanks to all who are willing to create awareness for MSA.


*****

There are those that look at things the way they are, and ask why?

I dream of things that never were, and ask why not?

(by Robert Francis Kennedy quoting George Bernard Shaw)


*****

World MSA Day October 3


Even though we speak different languages, are different colors and are of different cultures, we all have the same disease.

With all our differences we are united in battling MSA and we truly hope in miracles. One day they will find how to cure MSA.


We hope that everyone involved in any association, group or as an individual,

will take time to talk to others about MSA.

We ask that on the 3rd of October special attention is given to bringing about awareness of the subject. 

This can be done by organizing some activity in your group, your community, your city and if possible even in your country to raise what is needed to combat MSA.

 

To all MSA patients, family of patients, caretakers from all over the world, as from now,

the 3rd of October is a special day for you.


Please; place this date on your agenda and try to organize a local event on or around October 3rd. 

It can go from very small actions in the little town by talking with a few school kids and make them aware about MSA. Organize a local Bingo, Bowling …, or even some bigger events together with local Medical support from your Neurologist, Doctor or Nurse. …If you are up to it, even a large show to raise proceeds would be welcome. Please let us know what your plans are and we will add it into the international MSA calendar.

We rely on the local support groups and organizations to highlight MSA in their own group, area, city, and country. 

Each local group can use this day to promote local Awareness and obtain funding and support.

It is through the local groups that World MSA Day will become the most important day of the year for all MSA patients.


If you as an individual, as a group, or as a community want to bring your local activities into the spotlight, please forward brief information and a contact email / postal address.

We will put you on this special website of the WORLD MSA DAY.


This is a free website with no commercial intentions.

 

Please, spread the word…….

contact@world-msa-day.org


africa@world-msa-day.org

america@world-msa-day.org

asia@world-msa-day.org

australia@world-msa-day.org

europe@world-msa-day.org

webmaster@world-msa-day.org



Donate / Donnez  / Doneer / Spenden : Paypal-link:





contact@world-msa-day.org


Letterpost: MSA - Louis Huybrechtsstraat, 7 -  BE2150 BORSBEEK (BELGIUM)

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WORLD MSA DAY 2018

  World MSA Day.org

Multiple System Atrophy   

Journée Mondiale pour l'AMS

Brussels

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